The main event- disability experience for me started in 2015. I was bitten by a tick and I had no knowledge about disease at the time. I just thought what the hell is this weird thing on my neck? I was very sick but never thought to link the two things. I saw a doctor and my GP. GPs in England weren't really trained about Lyme disease at the time. Where they were taught like it's very rare. And my particular region is actually a hotspot so I just happened to kind of slip the cracks of negligence and they didn't know what it was. 

I have days when it's not uppermost in my mind a lot more than these days. Every day I kind of keep track of where I'm at. I write three numbers at the end of the day. One is pain. One is fatigue. One is mood and that's just to try and keep track of where I'm at. So I can see a little off kilter. I rate from 1 to 10 So one is really good. Anything under three I consider when I have quite a lot of days. That are under threes on the pain number. But again, unfortunately with endometriosis, there doesn't seem to be cyclical rhyme or reason. And if I get too stressed, I'll have like a seven and if I get too stressed for too long or have like several days of sevens sometimes it goes higher, but that tends to be less often these days.

So much grace. I mean, it's a whole thing trying to get your head around it at the start. But in terms of what it gives you, its grace and strength and resilience. It's kind of the power of self advocacy, which then does wonders for yourself in general. So much, so much.

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